HeartKids was our official charity partner for the 2020 People’s Choice Community Lottery. We encourage people to buy tickets for our charity partner when finding it hard to choose a community group to support.
Who is HeartKids?
HeartKids is the voice for all Australians impacted by congenital heart disease, with an aim to help them and their families lead the most fulfilling life possible. HeartKids provides lifelong support to those living with a congenital heart condition, as well as to those who have sadly lost a child or young person to congenital heart disease or associated conditions.
5 facts about heart disease...
1. Congenital heart disease is the largest cause of infant death in Australia.
2. Eight babies are born with a heart condition in Australia every day
3. Four precious lives are lost each week
4. There is no known cure
5. Thanks to medical advances, there are over 64,000 people living with congenital heart disease in Australia.
HeartKids receives no government funding and is only able to carry out their lifechanging work with support from the public.
Funds raised through the People's Choice Community Lottery will go towards providing support for heart kid and heart angel families, with things like:
Care-bags for families in hospital
Peer mentor support
Support HeartKids through the People’s Choice Community Lottery here.
The Newell Family Story
The families of kids with congential heart disease do it tough. You can help make it easier for them.
No two stories are ever the same, every person’s journey is different, and children born with congenital heart disease also have different stories. Some are born with small holes in their heart that close with no intervention while others are born with complex heart defects that require lifesaving operations. Unfortunately, the Newell family fall into the latter.
Young parents Logan and Angel like all expectant parents had hopes and dreams for their little family. All that changed in a heartbeat at their 18-week scan when little Azariah was diagnosed with Hypoplastic Left Heart Syndrome and an intact atrial septum.
Azariah had open heart surgery to open the intact atrial septum at only 10 minutes old. Sadly, he grew his wings at just 4 days old.
“Losing Azariah traumatised us and we struggled to cope. He was such a brave little fighter. He went through more in his short life than what some adults go through in their entire lives. Every day is hard, it absolutely broke us, but it also has made us stronger as parents.”
Logan and Angel welcomed another baby boy in August last year. Unfortunately, little Izayvier was also diagnosed with various congenital heart defects at their pre-natal scan.
“Even though we had a better understanding of what to expect when Izayvier was born, we were so traumatised from losing Azariah that it was very hard going back to Westmead Hospital. The sound of beeping machines, the smell of the tapes used for the ventilator and feeding tubes triggered such anxiety and we both struggled. We didn’t know if we’d be bringing a baby home.”
Luckily after a 10-hour surgery at 3 days old and a pacemaker implanted at 10 days old and weeks of recovery, they were able to bring little Izayvier home.
It has come at an emotional and financial cost.
“Being a heart parent means a lifetime of hospital appointments and life never being the same. We have spent thousands of dollars on food and accommodation and all the other costs associated with a sick baby.”
“We didn’t know about HeartKids when we had Azariah and having had such amazing support with Izayvier we wished we had known. HeartKids have been there for us prenatally and during our hospital stay, always checking up on us and have helped us out financially so we could afford meals and accommodation allowing us to be close to Izayvier. Since we left hospital, they have also connected us with other heart families who understand our lives and provided further financial assistance as things have been tough with one income. This time around we have felt less alone and are forever grateful.” – Angel Azariah & Izayier’s Mum
Purchasing a ticket in the People’s Choice Community Lottery will help HeartKids support more families like the Newells when they are going through tough times. Thank you for participating in the lottery.
P.S Little Izayvier is doing well and is a curious and happy little boy.